Organization · Grant Maker
TSC Alliance
The TSC Alliance is a nonprofit organization focused on improving the quality of life for individuals affected by tuberous sclerosis complex (TSC), a rare genetic disorder. Founded in 1974, it advocates for research, education, and support services.
Overview
What TSC Alliance does
What TSC Alliance is
The TSC Alliance is a nonprofit organization focused on improving the quality of life for individuals affected by tuberous sclerosis complex (TSC), a rare genetic disorder. Founded in 1974, it advocates for research, education, and support services.
How it participates in the startup ecosystem
The current public profile supports grantor and community capabilities. Each capability below is shown separately so organization identity and role-specific information do not get conflated.
Operational profile
Organization status and context
Organization status describes the entity itself. Funding and program availability appear within the relevant capability profile.
- Operational status
- Active
- Organization type
- Grant Maker
- Founded
- Founded in 1974
- Approximate age
- About 52 years
- Structured capabilities
- Grantor · Community
- Last reviewed
- April 11, 2026
Official channels
Find TSC Alliance elsewhere
Open the official website or a supported primary organization account.
Capability profile
TSC Alliance as a grantor
Grant thesis
The TSC Alliance is dedicated to supporting individuals affected by tuberous sclerosis complex (TSC) through research funding and advocacy. Their mission is to improve understanding and treatment of TSC while promoting awareness and better healthcare policies.
Focus narrative
The TSC Alliance invests in research and initiatives aimed at improving the understanding and treatment of tuberous sclerosis complex (TSC). Their focus includes funding research projects, providing resources for patients and families, and advocating for better healthcare policies related to TSC. They engage with healthcare providers and researchers to advance the understanding of TSC and its clinical manifestations.
Value and support
The TSC Alliance provides value beyond funding by offering resources for patients and families, advocating for healthcare policy improvements, and facilitating collaboration among researchers and healthcare providers to advance TSC research.
Grant economics
- Dilutive
- No
- Nonprofit only
- Yes
Eligibility and fit
- Audience
- Researchers
- Sectors
- Healthcare
- Regions
- United States
Process and recipient context
Application process
The TSC Alliance collaborates with researchers and healthcare providers to support clinical research and trials related to TSC. They maintain a Natural History Database and a Biosample Repository to facilitate research efforts. Specific details about the application process for grants were not provided.
Capability profile
TSC Alliance as a community
Community overview
The TSC Alliance is an organization focused on tuberous sclerosis complex (TSC), a genetic disorder that causes tumors to grow in various organs. It was founded to support individuals affected by TSC and to promote research and awareness about the condition. The organization is based in the United States.
Community focus
The TSC Alliance invests in research and initiatives aimed at improving the understanding and treatment of tuberous sclerosis complex. Their focus includes funding research projects, providing resources for patients and families, and advocating for better healthcare policies related to TSC. They engage with healthcare providers and researchers to advance the understanding of TSC and its clinical manifestations.
Member value
Members of the TSC Alliance benefit from resources related to TSC, including funding opportunities for research projects, educational content, and community support. The organization also advocates for better healthcare policies and provides updates on TSC-related news.
Membership
- Pricing models
- free
Audience and fit
- Audience
- Researchers
- Benefits
- grant-funding, network-access, and media-exposure
- Program types
- community and other
- Regions
- United States
Community activity
Events and activity
The TSC Alliance organizes events to raise awareness and support for TSC, including research conferences and community gatherings.
Notable members
Key team members include Sam Metzger, Daniel Klein, and Jamie Saylor.
Common questions
What to know about TSC Alliance
Upseed classifies TSC Alliance under the Grant Maker organization type. Its current public profile includes grantor and community capabilities.
Source and update disclosure
Know what this page is based on
Source basis
Public organization and program material, official websites, and structured Upseed records.
Last reviewed
April 11, 2026
Known limits
Capability profiles appear only when a structured public profile also contains decision-useful role evidence. Terms and availability can change.
Upseed is an independent guide. It is not affiliated with or endorsed by the organization described on this page.